Clíona’s Story

Clíona’s Story

Clíona Johnson, from Dublin, whose son John Paul lived for just 17 minutes “At my 22-week scan I was given the diagnosis that my son had anencephaly, a condition where the baby’s brain doesn’t develop fully. I felt complete devastation as the future my husband and I...

What support is available if my baby is going to die?

One Day More and Every Life Counts are Irish charities which offer support to mothers and fathers of babies with life-limiting conditions. They enable families to make meaningful plans for their child’s life, birth, and death, in a way that honours the baby as well as...